MIBG SCANS ARE CLEAR & We Are Back Home Again!
Brooke had her MIBG scan this morning and the results are in and the scans indicate that there is NO presence of Neuroblastoma in her body! She will still need to get a Bone Marrow Biopsy to make sure that the marrow is clear as well but this is such great news!!! We have waited so long to hear that news! Thank you all so much for all the prayers! We did find out today that although her scans are clear now they will be doing radiation to the areas (skull & tops of both femurs) where her last scans back in May showed she had NB as well as the abdominal area where the initial tumor started. We will be heading back up to start radiation at University of Penn Wednesday Sept. 23 (initial appt. to do all the calculations and she will get her tattoo’s) with radiation starting that next Mon the 28th. She will get radiation for 12 straight days (with breaks on the weekends) as an outpatient.
This has been such a great day for us and to top it all off we got a very special visit from David Akers of the Philadelphia Eagles this afternoon before we left. I was so impressed, not just by the fact that he is a great player, but that he was so genuine, kind and caring and he dedicates so much time, effort and money to help the kids at CHOP and makes numerous visits there to meet with the kids. He spent about 45 minutes with us in the room and Brooke really got a “kick” (sorry, I had to say it) out of him. He was so great with her and she was so happy to share her great news with him! Thank you so much Sandy Dickerson for setting this visit up!
Well, we finally got home tonight at 9:00pm and are all very tired but we are just busting at the seams with joy right now and wanted to share this all with you. We know that with this disease we always have to be cautiously optimistic and we still have so far to go but with all the struggles it is just such a joy to have moments to celebrate! We have learned to appreciate every good day and even the bad but today we feel doubly blessed.
As we approach the anniversary tomorrow of September 11th I would also like to remind everyone to please pray for the families who lost loved ones on that tragic day and let us never forget.
Thank you and God Bless,
Amy
10 comments:
Prayers have been answered! Your family has gained many new friends during this fight. Sorry but your stuck with us. Brooke is in our blood. Yesterday I prayed every chance I had for the scan to be clear. I sat here for awhile last night waiting, hoping and praying for an update. I couldn't hold the tears back when the news finally arrived. God Bless you Brooke, Amy, Rob and extended family.
Great news!
This is great news. Prayers continue.
RP
WOOHOO! God is good!
Frustrated
I am so happy for Brooke and her family! I have tears in my eyes and goosebumps all over just from knowing that God has answered all of our prayers! Stay healthy Brooke!! Live your life to its fullest!!
I'm crying. The best news I've had in a long time. God bless this dear little child.
Good to hear!
Wonderful!
Thank you God !!for answering the prayers of this little one and her family and friends and well wishers.We give you the praise and the honor and the glory forever..Amen ..My heart rejoices.
I'm am so happy for Brooke and her family. It has been a long battle and this family has been very strong. I look forward to seeing updates on Brooke enjoying her new lease on life!!!
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