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Monday, September 26, 2011

A Brooke Mulford Update 9-26-11

Sorry for the delay in updating!  Fabulous news with all scans and tests.  The nodules and ditzel did not show up on the CT scan!  MIBG scan is clear as well.  She wasn't able to complete the Pulmonary Function Test (tough for a 6 year old to do).  Neuropsych baseline test results were all for the most part very good (she will get re-tested every 2 years to monitor any possible late cognitive issues from skull radiation).  Still waiting to hear back on some of the labs but everything that had come back was good.  We had a great time while we were up there at the Beyond Cancer event at CHOP Sunday and at the Camden Aquarium Monday. 
We are getting ready to head back up to NJ tonight.  She has eye doctor and ENT appts at CHOP on Monday (please pray that her Amblyopia has improved).

We will also be participating in the Parkway Run/Walk Sunday at the Four Seasons Hotel , One Logan Square, 18th Street and Benjamin Franklin Parkway, Philadelphia.  It is too late to sign up online but you can still sign up at the event.  Registration opens at 7:00am and the race starts at 8:30am.  Tell them you are with Team Brooke.  Brooke and I will be hanging out around the CHOP tent until the walk begins so come find us!  If you think you will be joining us email me at so I know to look for you.

1 comment:

Anonymous said...

NEVER under estimate the positive power of prayer!!!