Just wanted to post a quick update. Since Brook arrived home last Tuesday afternoon she has had an amazing 4 and a half days. She has been eating and having lots of fun with Mommy. Daddy even had a great day with Brooke on Saturday. She has been to the beach and been on a lot of wagon rides while walking Bailey Dog. She has rode her new used Barbie Jeep many times and blown lots of bubbles as Bailey tries to pop them.
Today however things were not too good. It kind of started yesterday. Brooke's mouth became really sore and she could not eat. This morning she had a fever and a lot of pain. We knew from round 4 that this could happen again. Amy got all her things together and was on the phone with CHOP. We took Brooke to the ER at PRMC around 2PM. Brooke and Amy just now left for CHOP. After having Brooke's blood drawn and the results came back it was the lowest her counts have ever been. She needed a blood transfusion and platelets. They started a couple antibotics and the blood right away. The platelets would have to wait until CHOP because PRMC does not have radiated platelets. This time CHOP sent their own Ambulance and team down because of the blood transfusion and the counts being so low! One bonus their Ambulance has a TV and DVD player.
Brooke is really bummed out this time. She just wants to go home so bad. Today Aunt Kelly and Uncle George were comming over for a small cookout and she was so excited for this. What can you say the girl is like her Daddy she loves parties! She was just crushed! We were due to go to CHOP on Wednesday and Thursday for a lot of tests in preparation for the Transplant. The big one was another Bone Marrow Biopsy. This will set things back. I will do an update tomorrow once Amy and Brooke are settled in to know more how she is doing.
Thank you so much Dr. Forrestal for taking such good care of Brooke in the ER today. Thank you also for calling Miss Shannon(Dr. Forrestal's wife) and having her stop by with Riley, that at least brought a smile to Brooke's face. I would also like to send a big thank you to Jackie Gast for bringing over a turkey dinner this week. That meal supplied 3 dinners a couple lunches and a couple midnight dinners for me this week. We really stretched that one out. Now that Mothers Day and SU graduation is over hopefully I can be around a little more. Again Thank You to everyone out their pulling and praying for Brooke!
Today however things were not too good. It kind of started yesterday. Brooke's mouth became really sore and she could not eat. This morning she had a fever and a lot of pain. We knew from round 4 that this could happen again. Amy got all her things together and was on the phone with CHOP. We took Brooke to the ER at PRMC around 2PM. Brooke and Amy just now left for CHOP. After having Brooke's blood drawn and the results came back it was the lowest her counts have ever been. She needed a blood transfusion and platelets. They started a couple antibotics and the blood right away. The platelets would have to wait until CHOP because PRMC does not have radiated platelets. This time CHOP sent their own Ambulance and team down because of the blood transfusion and the counts being so low! One bonus their Ambulance has a TV and DVD player.
Brooke is really bummed out this time. She just wants to go home so bad. Today Aunt Kelly and Uncle George were comming over for a small cookout and she was so excited for this. What can you say the girl is like her Daddy she loves parties! She was just crushed! We were due to go to CHOP on Wednesday and Thursday for a lot of tests in preparation for the Transplant. The big one was another Bone Marrow Biopsy. This will set things back. I will do an update tomorrow once Amy and Brooke are settled in to know more how she is doing.
Thank you so much Dr. Forrestal for taking such good care of Brooke in the ER today. Thank you also for calling Miss Shannon(Dr. Forrestal's wife) and having her stop by with Riley, that at least brought a smile to Brooke's face. I would also like to send a big thank you to Jackie Gast for bringing over a turkey dinner this week. That meal supplied 3 dinners a couple lunches and a couple midnight dinners for me this week. We really stretched that one out. Now that Mothers Day and SU graduation is over hopefully I can be around a little more. Again Thank You to everyone out their pulling and praying for Brooke!
5 comments:
Brooke will be in my prayers tonight as she has everynight. She has come so far with her treatments.
Please EVERYONE take a few moments tonight and everynight to pray not only for Brooke, but for her parents and the doctors that treat little Brooke.
I tell you this so sooo sad to read bless little Brooks heart. I am praying for her and mom and dad hang in there. I truely hope things get better.
Let's keep Brooke in our prayers and her folks too.
Brooke.... here are some big (((((HUGS))))) for you little angel.
Keep your Sunny Side Up sweetie.
I will pray that God's angels (including her medical team!) will watch over her and restore her back to health.
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