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Monday, August 31, 2009

Brooike Mulford Update


Days +7 & +8 Post Transplant



Friday 8/28 Day +7:

The good news, Brooke has an ANC of 40 which means that her cells from the transplant are starting to engraft. The bad news, she spiked a fever of 101.8. They took blood cultures to make sure that it is not a line infection (in her central line) and as of 24 hours nothing has grown in the cultures (they also do a 48 hour culture so please pray that nothing grows).

Brooke slept pretty much the entire day. She was only awake for about 10 minutes of Aunt Cheryl & Cassidy’s visit and didn’t even have the energy to play with Miss Sarah! I don’t think through the entire past 9 months that I have ever seen her feel so bad. Inside her mouth is awful looking (red & raw), she is just vomiting constantly, I think her entire body is hurting and she just doesn’t have an ounce of energy. I can’t even put into words how difficult it is to watch my baby going through all of this.

Saturday 8/29 Day +8:

This morning her counts indicated that she needed another platelet transfusion. She had a lot of blood in her vomit again and Grammy noticed purplish spots on her hands/wrists & top of her feet which the nurse & the resident both said was Petechiae and was caused by her low platelet count. Brooke seemed to be doing better for a couple hours in the early afternoon and even got out of bed and played on the mat on the floor. I had a wonderful visit with a great old friend, Linda. We walked across the street from the hospital to have lunch together and catch up.

God Bless,

Amy

P.S. – I would like to wish Susan Smith the best of luck with the Ironman Triathalon she is competing in Sunday (8/30) in Louisville, KY. Susan had a purple Neuroblastoma ribbon airbrushed on her arm and has pictures of Brooke on her bike to motivate her to persevere through the pain & struggles of the race! Maybe when she crosses the finish line she can do Brooke’s Cancer Dance! Go get ‘em Susan our prayers are with you!

Anyone who hasn’t seen it yet, click on the link below to see Brooke doing her Cancer Dance. It was videoed at Grammy’s house the night before she was admitted for her 1st Stem Cell Transplant:

http://www.youtube.com/watch?v=8DpSSZC4rZE

3 comments:

Anonymous said...

Many have this little girl and her family in their thoughts and prayers.

Anonymous said...

This little girl and her family are in the thoughts and prayers of many. May God heal her.

Anonymous said...

Brooke you've got to get strong so you can do your dance. Keep up the fight sweetheart!