Just a quick update to let everyone know that Brooke's tests have been moved up to this week. Brooke & I arrived in NJ tonight around 8:45pm (we're staying at Grammy's house for a couple nights). She is scheduled for a CT Scan tomorrow (Wed) at 12:30 with an 11:30 arrival to start drinking the contrast (she does not enjoy that at all). Once we are done with the scan she will get an injection for her MIBG Scan. Then we will head over to clinic where I will be meeting with the doctors to discuss the immunotherapy clinical trial that Brooke will be starting on Nov. 18th.
Thursday morning we will head back over to CHOP first thing in the morning (don't have a time yet but usually between 8-8:30am) for a bone marrow biopsy. Brooke's last biopsy (June I think) showed that there was still Neuroblastoma in her marrow even after 6 rounds of chemo. Praying that the 2 weeks of high dose chemo from her 2 transplants mopped up any remaining cancer. Thurs afternoon at 1:00pm she will have another MIBG scan (Brooke's last MIBG that was done on Sept 10th was clear and praying that this is still the case).
I've heard other parents talk about how stressful scan weeks are. Neuroblastoma is such an aggressive cancer and there is such a high risk of it coming back.
Please keep Brooke in your prayers the next couple of days and pray for NED-No Evidence of Disease!!!!
God Bless,
Amy
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