MIBG scan is CLEAR!
Thurs afternoon Brooke had her MIBG scan and Dr. Weiser called me Thurs evening with the news that the scan was clear. Brooke had her Bone Marrow Biopsy on Thurs morning. Once again, like during her radiation, she came out of sedation with emergence delirium (screaming, crying, kicking...). She had asked me to have a McDonald's fruit and yogurt parfait ready for her when she woke up which she grabed from me-took a huge spoonful and launched it! Once she calmed down a little she wound up eating 3 of them-she couldn't eat them fast enough! I think donuts are out and McDonalds Parfaits are in now! She was given morphine for the pain and we headed down for her MIBG. She did a great job being still as a statue for almost the whole scan (she got a little antsy the last couple minutes when the Little Bill video she was watching cut off).
We will be heading back up to CHOP next week for some more tests. Thursday she will have a clinic visit for clinical trial labs and friday she will have an audiology exam and an opthomology appointment. I have noticed alot the past couple of weeks that she seems to be having difficulty hearing (prior to her transplants she had high frequency hearing loss and we were expecting more loss after her 2nd transplant due to the carboplatin). She is also way past due for an eye exam and has been lately telling me that her glasses aren't working as well.
Please keep Brooke in your prayers...she has such a long road still ahead. We are hoping that the bone marrow biopsy results are back on Monday and we hear the sweet words "No Evidence of Disease"!
God Bless,
Amy
2 comments:
Prayers are with you!
I sure hope she makes it through all this, after all that she's been through. She has suffered so much, and to be so young. It's a shame. I hope she not only wins the battles, but wins the war. She deserves a long life.
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