Well, "Hell Week" is definitely living up to it's name! Since my last entry Brooke's temperature has remained anywhere between 102-104.8. Her last temp was actually starting to get a little more normal (100.3) so hopefully the fever is gone now for good. She needed to be on "blow by" oxygen Thurs & Fri night but did well without last night. Her heart rate got as high as 172 but averaged in the 140's (currently 139). Her blood pressure was fairly stable throughout this round. The hives went away once they slowed down the rate of her infussion and never came back.
Enough of the technical stuff...overall she has just felt plain awful. she is in pain and has been sleeping most of the past 2 days. she never even felt up to getting out of bed to look at the snow out the window (which, by the way, I just saw on the news that Philly got 23"). Saturday she asked me to go outside (once the snow stopped), build her a snowman & take a picture of it for her but Sunday she never wanted me to leave the room. Hopefully there will still be snow at home when we get there (my guess is there will be)!
Brooke is due to be discharged tomorrow (Monday) but looking at her right now I don't know how that is possible. Everyone says though that once the infussions are done (antibodies 4:00am & IL2 9:30am) that the side effects should all stop. So we will see how she is doing tomorrow and take it from there.
I'm going to go ahead and keep this short tonight.
I'm attaching a YouTube video just for fun that I put together back in June of the first 6 months of treatment. It's very short (about 1 1/2 minutes):
Brooke's Journey with Neuroblastoma
Please Pray that all the side effects are gone by morning and that Brooke is feeling better.
Thank you and God bless,
Amy
15 comments:
God bless you dear.
Brooke and Mom~
I pray that you are feeling better to be able to enjoy the holidays!
Kisses to you
Amy, you and Brooke have the love, prayers, and just plain best wishes of SO many people on this blog and elsewhere. May the knowledge of that continue to strengthen and up lift you both.
Brooke, I hope you'll be feeling better real soon and have a good Christmas.
here is the link to the video
http://www.youtube.com/watch?v=W12aQtwlXyk
god bless the mulford family!
I hope and pray she is home by Christmas
Merry Christmas Mulford Family. I am hoping that she will start feeling much much better and she can come home. If not, I know Santa will still be able to find her.
Wishing Brooke and the Mulford family a Merry Christmas. One at home and with a snowman outside the window.
1:51, here here!! Well said!!
Brooke is not being discharged today. Her vitals are looking good but she still feels awful. she can barely sit up and only wakes up for about 10 min at a time and cries most of the time she is awake. Hopefully by tomorrow when once she's been off the meds for 24hrs she will feel better.
3:18, thanks for this update, even if it did make me teary eyed. Hang tough, sweetheart Brooke. We love you and are pulling for you.
Merry Christmas Brooke and Family! I hope and pray you start feeling better soon, Brooke! Santa will be comeing anyday now! Stay strong and have a wonderful New Year, too! God Bless
watch WBOC at 7pm to see a special airing on Brooke Mulford.
here is Brooke's story on WBOC.com
http://www.wboc.com/global/video/flash/popupplayer.asp?ClipID1=4402993&h1=A%20Little%20Girl's%20Brave%20Cancer%20Battle&vt1=v&at1=Promotion%2024&d1=245533&LaunchPageAdTag=Search%20Results&activePane=info&rnd=68554723
Keeping on fighting precious girl. We are praying for you!
Susie
Thanks for the updates Emo.Can you print an address again for cards to be sent?
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