The Latest Update On Little Brooke Mulford ;-)

Just wow! What a week for everyone. Wanted to let everyone know what is going on. After arriving at CHOP in the wee hours of Tuesday morning Brooke and Mommy got a little sleep. On Tuesday Brooke had to receive platelets and another blood transfusion. Her counts were super low to have a blood transfusion 2 days in a row. At least Tuesday night Brooke got to play hospital bingo, where she won two games.

Brooke was very happy to see Grammy on Tuesday and Wednesday as well. Wednesday Brooke started feeling a little better and ate a little. Of course she was pumped up for Wednesday night to watch the show Wipeout. She has been talking about this for months. Amy has had to keep her satisfied with taped shows from last year.

After that it was time for bed, because Thursday morning was a very big test, a full body MIBG Scan. First thing Thursday morning Brooke was wheeled off for the scan. Brooke did amazing again. She sat perfectly still and did not move. Afterward she told Mommy that she had a very bad itch on her nose for about 10 minutes and did not scratch it. Everyone was just so amazed. Amy the tech who did the scan, told Brooke she was very pleased to meet her and had been following her story everyday, isn’t that so cool?

As the day went on Brooke got to see Grammy, Uncle Johnny, Aunt Johanna and Daddy. Later that day a doctor came in and gave the results of the scan and Dr. Weiser would be in later to elaborate more. Talk about pure torture to Dr. Weiser arrived. The results of the scan were as follows: Everything was clear except 3 areas. At the top of both femurs and in the skull were very slight traces of Neuroblastoma uptake residual cells.

To put things in perspective on a scale of 1 to 100 When Brooke arrived at CHOP she was 99 and currently she is 1. Dr. Weiser stated the Team is very happy, because sometimes the Chemo does not work and all signs point to that Brooke is responding and her course of treatment is still on track. These 3 spots are not tumors and are very slight. They are so small that radiation is not even required before proceeding. Of course Amy and I just wanted to here no traces all clear!

As Brooke’s counts continue to come up she will have other tests this weekend. Those tests consist of some cat scans. Brooke is scheduled to have another Bone Marrow Biopsy next Thursday. That along with the MIBG really confirms where Brooke is in the treatments. She is still on tract for the transplant in a couple weeks.

Today Brooke really made a big jump on her counts and was running all over the room according to Amy. Hopefully she will be able to come home Sunday. Well that is where we are right now. I need to sign off, because I need to get up at 5:30AM and be in Medford NJ tomorrow for Children Capture the Cure Event. First there is a motorcycle ride for Brooke put on by the Cyclone Riders MC, NJ Chapter with around 200 riders and I hear the secret celebrity is the host and speaker for the show Deadliest Catch. How cool, but need to be in Burlington NJ by 9:30AM.

Then its off to the main event, The Children Capture the Cure Event which will feature the Little Miss Rose Pageant. This event takes place from 10AM to 5 PM at the Indian Acres Tree Farm in Medford NJ. There is 75 contestants signed up for the pageant and they are expecting around 600 people. The event is to benefit the American Cancer Society and The Brooke Mulford Foundation. This is going to be some kind of event!

Well another late night, another early morning and a very long day. Hopefully after the event I can slip up to CHOP and say hi to the celebrity of the day and Mommy. Then get some sleep and bring everyone home! Rob