Little Brooke Mulford Needs Prayers

Hi everyone,

It's after midnight and I need to get to sleep since the nights are usually the most difficult I get very little sleep. The past three nights Brooke has needed to be put on oxygen. Friday night her pulsox dropped to 83% (should be above 90% minimum) and she needed oxygen until about 1:00 in the afternoon. They did a chest xray Sat morning and they think she has pneumonia or a collapsed lung but are leaning toward pneumonia. She will be getting a repeat xray done tomorrow morning (Monday). They have also done some other tests and should get results late tomorrow on those.

Don't think we will be getting out of here Monday as planned - which I would not feel comfortable leaving in light of the situation anyway. She has been spiking fevers (up to 104.1) off and on through out the days and nights (which is typical with this clinical trial but still tough as a parent to see). Her blood pressure has improved since the first day. She is due to get her 2nd blood transfusion this week any minute now (her hemaglobin was 7 last night but they weren't able to give the transfusion while getting her antibodies infusion so it had to wait until tonight).

We have been missing Grammy so much this week as she has been home sick. Uncle Johnny & aunt Johanna have been coming in when they can (Wed, Fri & Sat) and it's always a bright spot in our day. Daddy came to visit yesterday and Brooke was talking a mile a minute the entire time he was here (she was so excited to see him) and I got to see the light of day for the first time since Wed (we don't have an outside window - just a noisy view of the ER waiting room). Also, had a fun visit with aunt Cheryl & cousin Brian today. Whenever we have visitors she kicks me to the curb (she knows she can get away with anything when I'm gone) but the minute they're gone I can't even stand outside the door without her telling me she needs me! We brought in walkie talkies this time so that if I'm putting laundry in or running down to the caffeteria she can talk to me if she needs me but they don't work in the caffeteria. We practiced with them all last week at home. She's so cute on them and always ends with "over & out" (no idea where she got it from).
Well, those are the highlights and lowlights since Thurs. Please pray that her lungs clear quickly and that she doesn't get worse. Also, please pray for Grammy to get better soon...we miss her so much.

God Bless,
Amy

The Lord is my Strength and my Shield; my heart trusts in, relies on, and confidently leans on Him, and I am helped; therefore my heart greatly rejoices, and with my song will I praise Him.
-Psalm 28:7