Brooke Mulford Update

New You Tube video above: Brooke doing a dance (on 9/3) to a song written just for her by Songs of Love. Caution: watching this video (at the end) may cause dizziness!

Thursday 9/3 Transplant Day +13: Happy 1st birthday to Bailey dog! Thanks so much Miss Liz and Dr. Dave for making Bailey’s birthday special! Brooke had a great day today. The morning started with a visit with Aunt Cheryl and a surprise visit from Rev. Patterson. Brooke was in a very happy mood and had so much fun with them both. Not long after they both left, then Grammy arrived followed by Uncle Bruce (who Brooke enjoyed playing hide-n-seek with) and last but not least Aunt Alisyn came to visit and helped get Brooke tucked in for the night. Brooke has been saying the sweetest prayers at night lately. She prays every night for Dr. Alvarado’s family, the kids she has met at CHOP and last night she prayed for God to take care of her Daddy. It was so touching…I just love when she prays from her heart and that with all she is going through that she is still thinking about others.

Friday 9/4 Transplant Day +14: Still having some issues with nausea, vomiting & diarrhea. I hope that these things go away soon. It will be very difficult to get her to start eating and drinking while she’s still feeling like this.

After Grammy arrived 2 radiation oncology residents and the attending (from HUP – Hospital of Univ of Penn) came to speak with me about Brooke’s radiation plans. At the moment the plan is for her to have radiation to her abdominal area (the right side where her initial tumor was) for 12 days. But because her last MIBG scans (done after chemo round 5) indicated that there were still small amounts of Neuroblastoma in her skull and both femurs they have decided to do another MIBG to see if the chemo from round 6 and the 2 transplants have “mopped up” what was left. So if they detect any NB anywhere than the radiation plan will likely change and more areas will be radiated and the number of days could increase. She couldn’t get scheduled for an MIBG until 9:00am Thurs (9/10) so we will be staying here until then. The plan is for her to start the radiation process on Mon 9/21. She is still not eating or drinking anything (they are taking her off IV nourishment Sat morning so hopefully she will start at least drinking soon).

Tonight we got a wonderful surprise visit from Daddy! He came just as Grammy was leaving (around 6pm) and stayed until 10:00. We were both so excited to see him!

Saturday 9/5 Transplant Day +15: Brooke needed a platelet transfusion this morning (19,000). She seemed to have a difficult time with this one and fell asleep as soon as it was done. Nana came while she was sleeping to give me break for a few hours. Once Brooke woke up she had a great time with Nana doing activities with all her stickers and playing the new Nintendo DS game that Nana brought her.

Thank you everyone for all the cards, stickers and thoughtful gifts that have been sent to Brooke this admission. She has loved getting mail almost daily and it is such a nice pick-me-up when she is having rough days.

God Bless and please pray for her MIBG scans on Thurs to show No Evidence of Disease!

Amy