Well, it’s that time once again…scanxiety. 3 months ago, Brooke was supposed to have her last set of quarterly scans and move to 6 months scans but her last CT scan showed 2 small nodules on her lungs so we decided to repeat scans again in 3 months to keep an eye on the nodules. Tuesday Sept 20th and Wednesday the 21st she will have (Tues): a Pulmonary Function Test, CT scan of head, neck & torso, MIBG injection, labs and Bone Marrow Transplant Clinic (Wed): MIBG scan, meet with Neuropsych team for results of neuropsychology testing done in July and Oncology Clinic. Please pray that she is still NED and that the nodules are completely gone.
Now for some of the fun stuff Brooke has been doing since I last updated! You might recall back in April I posted about Brooke and I getting back stage passes to see James Taylor in Norfolk, VA well, we got to do it again in Baltimore in May and we brought Aunt Cheryl with us this time. Once again we got to hang out with him backstage and he invited us on his bus again! When we were walking out to the bus there were about 30 people waiting out there to try to get his autograph and he stopped and told all the fans that he promised he would come back out but he needed to get Brookie on the bus first! It was so sweet! He hung out with us for awhile on the bus and then went out to see the fans but told us we could stay on the bus if we wanted to so of course we stayed! While he was gone we hung out with Kate Markowitz, one of his background vocalists with the voice of an angel. She was so kind and friendly and Brooke instantly loved her! Brooke had fun playing hide and seek in everyone’s bunks on the bus (you never would have know that it was close to midnight)! What a great night!
Brooke graduated from kindergarten in June and she and all of her classmates did such a great job at the ceremony. It was such a wonderfully emotional night that I will always treasure – we will miss you Mr. Lamkin & Miss Stacy, thanks for such a great year! I have some video from it that I need to upload and will share with you.
Throughout the summer, Brooke participated in a one week golf, tennis, swim camp at Green Hill, a cooking camp at Camp Odyssey and several days at Salisbury Christian Camp. We went to Sesame Place for a day, a couple trips up to Long Beach Island and we spent 4 days in West Point, VA visiting the Darcy clan and going to Busch Gardens and Water Country.
September, my big girl started first grade and gymnastics and dance. So we’ve stayed busy, busy, busy having lots of fun! And as if Daddy wasn’t already busy enough with Market Street, he and his executive chef, Joel bought another restaurant! It will be called “Mojo’s” and is due to open the end of October!
Jean Schwartz, did a fabulous job putting together a cookbook to raise money for The Brooke Mulford Foundation for NB research at CHOP. It is called, Cooking with Brooke for a Cure and it is full of great recipes – thank you to everyone who submitted recipes and to Jean, Jack and Kellie for all your hard work! The cookbooks cost $12 and will soon be on sale at Market Street Inn or you can order from me (contact me at amulford5@comcast.net ) . You can also purchase them from Jean Schwartz, Kellie Noonan, my Mom and I believe Headquarters Hair Salon in Westmont, NJ might still have some). They are selling fast and we will most likely need to order more soon! Along with the cookbooks, we are still selling Team Brooke t-shirts (youth and adult sizes) and bracelets for NB research as well. Long sleeve purple shirts with gold print are $20, short sleeve gold shirts with purple print are $15 and purple and gold bracelets are $3. You can purchase these at Market Street or by contacting me.
September is Pediatric Cancer Awareness month and Sunday Sept 25th is the Parkway Run/Walk to benefit the Cancer Center at CHOP. We have once again put together a team “Team Brooke” and would love to have you join our team! Please follow this link to join “Team Brooke” http://giving.chop.edu/site/TR?team_id=7650&pg=team&fr_id=1290&et=wOR9ysuohDVF4d2pN7hBWQ..&s_tafId=4231 and click on Join Team (located above my name on the list of team members). If you are unable to join the team but would like to make a donation, click on the same link above and then click on the button that says, “Donate to Team Brooke” (Under the photo of Brooke). Hope to see you there!
Pediatric Cancer Facts: (http://www.kidsvcancer.org/facts/)
Each year around 13,500 children are diagnosed with cancer in the US, that’s more than a classroom of kids a day.
35,000 children are currently in treatment for cancer.
Some 25% of all kids who are diagnosed with cancer die.
•Some pediatric brain tumors, such as brain stem gliomas and pontine gliomas, are terminal upon diagnosis and no new protocols have been developed in 30 years.
•Many pediatric cancers, including neuroblastoma and disseminated medulloblastoma, are terminal upon progression or recurrence.
Cancer kills more children than AIDs, asthma, diabetes, cystic fibrosis and congenital anomalies combined.
The average age of death for a child with cancer is 8, causing a child to lose 69 years of expected life.
The death of a child is one of the most traumatic events a family might face.
I Hope the scans show nothing. I'm very glad you're experiencing taking your daughter to 1st grade.
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