Hi Everyone,
So sorry for not updating sooner. Had every intention of getting on here Monday to update but with Brooke feeling better her energy level is getting back to normal and I'm exhausted once she falls asleep at night! Anyway, if you haven't already heard...Brooke's bone marrow biopsy came back CLEAR so she is officially considered NED (No Evidence of Disease)...WOO HOO! This doesn't change her treatment plan...she will still be starting the immunotherapy clinical trial on Wednesday. As I've said before NB is a very aggressive cancer and we have to do everything we can to reduce the risks of it coming back so please keep her in your prayers.
Today Brooke and I headed up to CHOP for a clinic visit and an Echocardiogram and then to Grammy's house for the night. Tomorrow (Friday) we go back to CHOP for an Audiology exam followed by an Opthalmology exam. Please pray for minimal hearing loss (although I'm afraid it is significant) and stable or improved vision. I will try to update on the results of Fridays exams by Saturday. Please also pray for all the other children that are fighting the beast.
God bless,
Amy
Best wishes!!!
ReplyDeleteGod Is Good!! All the time.
ReplyDeleteJust trust him and believe.
God Bless You All!!
Congrats, Brookie! Let your strength inspire us all!! :)
ReplyDeleteGo head girl! God's got you and best believe before you, your parents, or any of us on this site could finish saying a prayer for you....it was done.
ReplyDeletePraise God!!
ReplyDeleteGod Bless little Brooke! You hang in there! You winn WIN the entire battle!
ReplyDeleteCindy
Kick butt Brooke!
ReplyDeleteWay to go, Brooke! And let's not forget the awesome scientists, nurses, and doctors who work every day to help fight this horrible disease.
ReplyDeleteBrooke,
ReplyDeleteMy neice is the oldest survivor of Retina Blastoma in the world - she's now 26 years old. She was told she would only survive until she was about 12! You just keep fighting!!!!! You can do it!!!!!
Bless you, Brooke! Now you have a life to do ANYTHING YOU WANT with! I can't wait to see the cool stuff you can do!
ReplyDeleteI'm so happy for Brooke and her parents. Little Noah Biorkman is 5 and he won't make it to Christmas so they celebrated Nov. 8. The outpouring from the world was amazing, toys, cards, baseball player visits. He looks like an angel with those gold locks. Hugs to Noah and his family.
ReplyDeleteAnd hugs to Brooke and hers.
Everyone, keep fighting neuroblastoma!
Dear Brooke and parents,
ReplyDeleteThere are many people out there who are praying for you and many people who are being uplifted by your experiences. Settle into the arms of God and let Him be your protector. God will see you through this. You all are an inspiration of strength and family love. "I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME." (PHILIPPIANS 4:13)Love, Another mom
Praises to GOD!!!
ReplyDeleteAWESOME!That is great news!
ReplyDeleteYou go baby girl!!!! Keep up the good fight. Lots of love and good wishes for you and your family.
ReplyDelete